Archives

Intersex Awareness Day for Families

October 27, 2013

October 26 is intersex awareness day. What is intersex? Here is the medical definition of being intersex. What is the legal definition of intersex? Regardless of our race, color, birth, gender, caste, religion, sexual orientation, we all have to deal with the laws. Depending on each person’s circumstances, to provide a “complete life”, one needs to understand […]

Loneliness and Secrecy for a Caregiver

June 26, 2013

Learn to live with truth with civility, dignity, and humility. Living in loneliness and secrecy as a caregiver is terrible. That means you are not getting the help and support you need and deserve. What are some of the issues that family caregivers experience?

Vindication As A Caregiver

March 6, 2013

UN calls for a STOP to normalization surgery of intersex people. What about the spouse caregiver of intersex who has been shunned and forced into silence? Is his suffering due to secrecy and lies from the medical community any kind of torture and violation of human rights?

Lessons of Being a Spouse Caregiver of Intersex

December 31, 2012

Fighting for equal intersex rights and equal IVF child rights are some of the lessons learnt from being a spouse caregiver of intersex.

Male Caregiver Feedback For Intersex Diagnosis

June 13, 2012

During Men’s Health Month, let us look at the condition of a young, male, spousal caregiver of Intersex patients. While the intersex patient is recommended pscyhosocial counseling and treatment, the same is not even thought of for the male caregiver. Instead, there is a complex web of secrecy and privacy surrounding the male caregiver threatening the health of the patient-caregiver.

Third Gender – Equality and Truth

May 29, 2012

Secrecy and stigma are terrible way to live. There are no laws to protect one’s equal human rights. It becomes worse when one has to live in secrecy and stigma as a caregiver. They have even lesser support and lesser rights or no rights. Without the truth, we cannot progress. The third gender and their allies and caregivers need to have an environment which encourages truth, tolerance, and respect.

8 Tips For A Caregiver of Intersex or Androgen Insensitivity Syndrome (AIS) Patient

May 10, 2012

Intersex or Androgen Insensitivity Syndrome is a traumatic genetic condition for the patient. It is a rare medical condition. It is even more rare to have a spouse as a caregiver of an intersex person and therefore very scant data is available. Here are 8 ways you can help as a caregiver your loved one, an intersex patient, to get through their medical condition.

Young, Male, Spouse Caregiver – A minority within a minority

April 23, 2012

A recent survey for the first time gives us a remarkable insight into the previously hidden world of young, male, spouse caregivers, and contrary to the well established and pervasive stereotype of the elderly female caregiver, we find within the data the existence of a rarely recognised and seldomly supported minority caregiving group, the young to middle-aged, male, spousal caregiver, a minority within a minority.

Caregiver of Alzheimer and Androgen Insensitivity Syndrome (AIS) or Intersex

April 17, 2012

Imagine a different medical condition like Alzheimer’s. While there is no known cure, the best cure is to rejoice the moments there are. There is a lot of information and resources and support groups for caregivers of Alzheimer’s. The inclusive approach makes the experience so much better both for the caregivers and the patients. Isn’t truth the best way for all caregiver-patient relationships regardless of the medical condition?

Inclusive Approach For Caregivers Of Androgen Insensitivity Syndrome (AIS)

March 29, 2012

The inclusive approach makes the experience so much better both for the caregivers and the patients. Isn’t truth the best way for all caregiver-patient relationships regardless of the medical condition? Secrecy and stigma make it worse than the intersex condition itself. It serves as a reminder of how HIV/AIDS people had to initially fight the taboo and still do just to present their concerns. Let history not repeat itself.