There is a cloud of secrecy in dealing with intersex issues. There is scant data and issues go under the radar. In the best interest of the child, should there be a waiting period study of when an intersex person has overcome personal trauma and crisis to care for an infant? By no means there is any suggestion that intersex people cannot be a parent but we also need to protect the best interests of the child.
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Inclusive Approach For Caregivers Of Androgen Insensitivity Syndrome (AIS)
March 29, 2012The inclusive approach makes the experience so much better both for the caregivers and the patients. Isn’t truth the best way for all caregiver-patient relationships regardless of the medical condition? Secrecy and stigma make it worse than the intersex condition itself. It serves as a reminder of how HIV/AIDS people had to initially fight the taboo and still do just to present their concerns. Let history not repeat itself.
What Is The True Cost Of Lying for Caregivers?
March 4, 2012Secrecy, lying, deceit are a double whammy. First it does not reveal the truth and second one has to undo the damage that secrecy or lying caused. It becomes difficult to calculate the cost of lying especially when playing with emotions.
Can Androgen Insensitivity Syndrome (AIS) Patients Be Parent?
January 30, 2012This is a fundamental birth right of every human – to procreate. However, it is not in each individual’s hands. Some people who are biologically capable of having kids choose otherwise for personal reasons. For some other people, its a matter of circumstances. For Androgen Insensitivity Syndrome (AIS) patients, its a matter of reality. They cannot […]
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To Whom It May Concern
I support the objectives of the Caregivers of intersex or AIS Support Group:
1. Inclusive palliative care approach for patient and family including caregivers and children.
2. Education and spreading awareness is a better long-term solution for all. The concealment-based approach has to stop.
3. In the best interest of the child, conduct a scientific study to evaluate if a "waiting period" should be established to be the primary care provider for infants immediately after adult AIS or Intersex patients :
a) have sex reassignment surgery.
b) have just started treatment with Hormone Replacement Therapy (HRT).
c) and are overcoming severe personal trauma and crisis.
4. All caregivers should be assigned an independent advocate/counselor to explain the condition and its effects to prevent them from becoming a patient.
5. Caregiver feedback should be sought in devising the hormone replacement therapy and associated behavioral symptoms of the AIS patient involving severe trauma, depression, and crisis.
6. Seek medical data or scientific basis to do sex reassignment surgery and hormone replacement therapy during a marriage when the intersex patient is already in their 20s or 30s.
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