Archives

Becoming a Caregiver at 40 instead of at 30 years of Age

July 17, 2014

Young caregivers have their heart in the right place but too often are victims of people or systems much bigger than them. With age comes wisdom and knowledge of how the world works and one understands that even as a caregiver one has rights. How to be a good caregiver and protect yourself at the same time.

Intersex Awareness Day for Families

October 27, 2013

October 26 is intersex awareness day. What is intersex? Here is the medical definition of being intersex. What is the legal definition of intersex? Regardless of our race, color, birth, gender, caste, religion, sexual orientation, we all have to deal with the laws. Depending on each person’s circumstances, to provide a “complete life”, one needs to understand […]

Intersex or Androgen Insensitive Syndrome (AIS) and Waiting Period Study

April 26, 2012

There is a cloud of secrecy in dealing with intersex issues. There is scant data and issues go under the radar. In the best interest of the child, should there be a waiting period study of when an intersex person has overcome personal trauma and crisis to care for an infant? By no means there is any suggestion that intersex people cannot be a parent but we also need to protect the best interests of the child.

Inclusive Approach For Caregivers Of Androgen Insensitivity Syndrome (AIS)

March 29, 2012

The inclusive approach makes the experience so much better both for the caregivers and the patients. Isn’t truth the best way for all caregiver-patient relationships regardless of the medical condition? Secrecy and stigma make it worse than the intersex condition itself. It serves as a reminder of how HIV/AIDS people had to initially fight the taboo and still do just to present their concerns. Let history not repeat itself.

What Is The True Cost Of Lying for Caregivers?

March 4, 2012

Secrecy, lying, deceit are a double whammy. First it does not reveal the truth and second one has to undo the damage that secrecy or lying caused. It becomes difficult to calculate the cost of lying especially when playing with emotions.

Caregivers Intelligent Ways To Survive

February 22, 2012

World is a beautiful place, we live in it! World is also a very ugly place. There is a balance one has to strike to care and survive successfully. Here are top 10 ways based on life experiences. Nowadays there are several one-liners you can find with constant words of inspiration and wisdom. This list takes those […]

Caregiver Rights – Its Time For A Change

February 13, 2012

It’s a very simple goal : Health Care Providers need to change the messaging to caregivers from “It’s not your business to be here between me and my patient” to “I am sorry, even though your loved one, the patient, has requested for your presence as a caregiver, I respectfully decline and I suggest you […]

Top 10 Tips For Caregivers of Androgen Insensitivity Syndrome (AIS)

February 10, 2012

Caregivers of Androgen Insensitivity Syndrome (AIS) are an underserved group. They are a minority within a minority. Often as with other minority issues, resources are hard to find. For Caregivers of AIS, this is a double whammy as they are a minority within a minority. Given the unique situation of AIS, the relationship of the caregiver […]

Can Androgen Insensitivity Syndrome (AIS) Patients Be Parent?

January 30, 2012

This is a fundamental birth right of every human – to procreate. However, it is not in each individual’s hands. Some people who are biologically capable of having kids choose otherwise for personal reasons. For some other people, its a matter of circumstances. For Androgen Insensitivity Syndrome (AIS) patients, its a matter of reality. They cannot […]